Patient-Centered Outcomes Research in Hematopoietic Cell Transplantation
Historically, the primary focus of outcomes research in hematopoietic cell transplant (HCT) has been on the outcome of overall survival; over the past several years more attention has started to be paid to identifying and conducting research in other significant outcomes of HCT, particularly those that matter most to patients and their caregivers. This type of research is known as patient-centered or patient-reported outcomes research. However, the number of researchers with expertise in patient-reported outcomes and how to measure patient-reported outcomes are few, and a community of researchers does not exist to enhance collaboration. To address these needs, NMDP sought and received an award from the Patient-Centered Outcomes Research Institute (PCORI) for a two-year project to engage a broad community of research and non-research stakeholders (including patients and caregivers) to develop a research agenda in patient-centered outcomes of HCT. This proposed webinar is part of the work plan for the PCORI award.
The Medical College of Wisconsin designates this activity for up to 1 hours of participation for continuing education for allied health professionals.
At the conclusion of this activity, learners will be able to:
- Describe the NMDP/Be The Match patient-centered outcomes initiative
- Identify how to become engaged in the patient-centered/reported outcomes project
- List research opportunities in patient-centered/reported outcomes research using examples from experts
- State measures of patient-reported outcomes being explored within the CIBMTR
|Navneet Majhail, MD, MS||Anthem, Inc.||Committee member|
|David Vanness||Trevena, Evidera, Smart Analyst||Advisory Board, Consultant|
- 1.00 AMA PRA Category 1 Credit(s)™AMA PRA Category 1 Credit(s)™
- 1.00 Hours of ParticipationHours of Participation credit.