Patient-Centered Outcomes Research in Hematopoietic Cell Transplantation

Minneapolis, MN US
November 16, 2016

Historically, the primary focus of outcomes research in hematopoietic cell transplant (HCT) has been on the outcome of overall survival; over the past several years more attention has started to be paid to identifying and conducting research in other significant outcomes of HCT, particularly those that matter most to patients and their caregivers. This type of research is known as patient-centered or patient-reported outcomes research. However, the number of researchers with expertise in patient-reported outcomes and how to measure patient-reported outcomes are few, and a community of researchers does not exist to enhance collaboration. To address these needs, NMDP sought and received an award from the Patient-Centered Outcomes Research Institute (PCORI) for a two-year project to engage a broad community of research and non-research stakeholders (including patients and caregivers) to develop a research agenda in patient-centered outcomes of HCT. This proposed webinar is part of the work plan for the PCORI award. 


ACCME Accreditation Statement:
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education through the joint providership of the Medical College of Wisconsin and National Marrow Donor Program. The Medical College of Wisconsin is accredited by the ACCME to provide continuing medical education for physicians.
AMA Credit Designation Statement:
The Medical College of Wisconsin designates this live activity for a maximum of 1 AMA PRA Category 1 Credit(s) ™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Hours of Participation for Allied Health Care Professionals
The Medical College of Wisconsin designates this activity for up to 1 hours of participation for continuing education for allied health professionals.  

Target Audience


Learning Objectives

At the conclusion of this activity, learners will be able to:

  1. Describe the NMDP/Be The Match patient-centered outcomes initiative
  2. Identify how to become engaged in the patient-centered/reported outcomes project
  3. List research opportunities in patient-centered/reported outcomes research using examples from experts
  4. State measures of patient-reported outcomes being explored within the CIBMTR
Additional information


Nicole Heino
Phone Number: 
+1 (763) 406-4811
Course summary
Available credit: 
  • 1.00 AMA PRA Category 1 Credit(s)™
    AMA PRA Category 1 Credit(s)™
  • 1.00 Hours of Participation
    Hours of Participation credit.
Course opens: 
Course expires: 
Event starts: 
11/16/2016 - 1:00pm CST
Event ends: 
11/16/2016 - 2:00pm CST
National Marrow Donor Program
500N 5th Street
Minneapolis, MN 55401
United States
Planning Committee:
Bronwen Shaw, MBCHB, PhD
Linda Burns, MD
Navneet Majhail, MD, MS
Dave Vanness, PhD
Elizabeth Murphy, RN, PhD
Ellen Denzen, MS
Linda Burns, MD
Heather Jim, PhD
William Wood, MD
Bronwen Shaw, MBChB, Phd
All persons in control of content have NO relevant financial relationships to disclose with the exception of the following persons:  
Navneet Majhail, MD, MSAnthem, Inc.Committee member
David VannessTrevena, Evidera, Smart AnalystAdvisory Board, Consultant


In accordance with the ACCME®  Standards for Commercial Support Number 6, all in control of content disclosed any relevant financial relationships. These relationships were reviewed via the MCW conflict of interest resolution process and resolved

Available Credit

  • 1.00 AMA PRA Category 1 Credit(s)™
    AMA PRA Category 1 Credit(s)™
  • 1.00 Hours of Participation
    Hours of Participation credit.


Please login or register to take this course.