18091, Setting a Patient-Centered Outcomes Research Agenda in HCT: Priorities in Education, Care Delivery, and Financial Burden
Program ID #18091
Historically, the hematopoietic cell transplant (HCT) community has focused on research to improve the potential for survival. Over the past several years more attention has been given to identifying and conducting research in other significant outcomes of HCT, particularly those that matter most to patients and their caregivers.
To address these needs, NMDP/Be The Match sought and received an award from the Patient-Centered Outcomes Research Institute (PCORI) for a two-year project to engage a broad community of research and non-research stakeholders (including patients and caregivers) to develop a research agenda in patient-centered outcomes of HCT.
Hematology, oncology physicians, nurse practitioners, and other health professionals that care for BMT patients
- Describe priority research focus areas in education for patients, caregivers and families
- Formulate observational research questions for models of survivorship care delivery
- Discuss the priority research gaps in the area of financial burden
- Linda Burns, MD
- Alison Loren, MD, MS
- Bill Wood, MD
- Christy Ullrich, MD, MPH
- Areej El-Jawahri, MD
- Staci Arnold, MD, MBA
- Lakshmanan Krishnamurti, MD
- Beth Murphy, EdD, RN
- Kim Schmit-Pokorny, RN, MSN
- Kate Tierney, RN, PhD
- Staci Arnold, M.D., MBA, MPH, Children’s Healthcare of Atlanta/Emory University
- Linda J. Burns, M.D. Vice President and Medical Director, Health Services Research
- Gloria Gee, Transplant Recipient
- Susan Kullberg, Transplant Recipient
- Lakshmanan Krishnamurti, M.D., Aflac Cancer and Blood Disorders Center Children's Healthcare of Atlanta
- Barry Schatz, Transplant Recipient
- Kim Schmit-Pokorny, RN, MSN, OCN, BMTCN, Nebraska Medicine
|Lakshmanan Krishnamurti, M.D||Bluebirdbio Inc.||Speaker|
All persons in control of content have NO relevant financial relationships to disclose with the exception of the following and in accordance with the ACCME® standards for Commercial Support Number 6, these relationships were reviewed via the MCW conflict of interest resolution process and resolved.
ACCME Accreditation Statement: This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education through the joint providership of the Medical College of Wisconsin and National Marrow Donor Program. The Medical College of Wisconsin is accredited by the ACCME to provide continuing medical education for physicians.
AMA Credit Designation Statement: The Medical College of Wisconsin designates this Enduring Material for a maximum of 1 AMA PRA Category 1 Credit(s) ™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Hours of Participation for Allied Health Care Professionals: The Medical College of Wisconsin designates this activity for up to 1 hours of participation for continuing education for allied health professionals.
- 1.00 AMA PRA Category 1 Credit(s)™AMA PRA Category 1 Credit(s)™
- 1.00 Hours of ParticipationHours of Participation credit.