The 2019 Neurofibromatosis Conference
First held in 1985 as a roundtable of 20 participants, the NF Conference is now the most important scholarly gathering of the NF research and clinical communities. The NF Conference is a global event, attracting more than 300 participants worldwide across a wide range of scientific disciplines, from research and clinical backgrounds, all focused on improving outcomes for patients with neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis. The NF Conference is a critical forum for consensus building and advancing basic, translational, and clinical research in NF and related fields, while fostering collaborations within and beyond the NF community. Importantly, the NF Conference is a key venue for attracting and growing new investigators in NF research and clinical care.
Target Audience
NF Clinicians and Researchers including clinic directors, clinic coordinators and other clinic providers. This group consists of physicians, nurses and genetic counselors.
Learning Objectives
Basic Research
- Understand the latest scientific breakthroughs related to the biology of NF
- Understand the major outstanding questions related to the molecular and cellular biology of NF
- Show how basic science relates to the development of NF tumors and other NF-associated conditions
Translational Research
- Ensure that clinicians and basic scientists are able to communicate and collaborate effectively by providing teaching on scientific terminology and approaches to signaling and animal models.
- Show how molecular advances have allowed targeted therapy for NF complications.
- Understand the histology of new animal models for NF (NF1, NF2 and schwannomatosis), and to describe the spectrum of lesions in relation to human tumors and to recent molecular data.
Clinical research
- Ensure that there is up to date knowledge of the diagnosis, clinical phenotype and natural history of the neurofibromatoses.
- Discuss current management of common complications of the neurofibromatoses in children and adults.
- Discuss and produce robust clinical and quality of life outcome measures to monitor disease.
Clinical practices
- Provide education on assessment and monitoring of NF related complications e.g. neuropathy and neurovascular disease.
- Discuss standardized approach to diagnosis and monitoring of malignant peripheral nerve sheath tumors.
- Discuss a series of difficult case studies, utilizing an interdisciplinary approach to treatment.
Specific disclosure information provided on-site at meeting.
KEYNOTE SPEAKERS | Allan-Irwin | Basbaum |
Heiki | Daldrup | |
Stephen | Groft | |
Lloyd | Minor | |
Vic | Riccardi |
SESSION CO-CHAIRS | Shivani | Ahlawat |
Jaishri | Blakeley | |
Michael | Caterina | |
Rebecca | Dodd | |
Gareth | Evans | |
Rosalie | Ferner | |
Michael | Fisher | |
Filippo | Giancotti | |
Marco | Giovannini | |
David | Gutmann | |
Justin | Jordan | |
Rajesh | Khanna | |
Shawn | Kwatra | |
Vanessa | Merke | |
Laura | Papi | |
Juha | Peltonen | |
Sirkku | Peltonen | |
Scott | Plotkin | |
Dawn | Quelle | |
Nancy | Ratner | |
Aaron | Schindeler | |
Elizabeth | Schorry | |
Eduard | Serra | |
Matthew | Steensma | |
Pamela | Trapane | |
Nicole | Ullrich | |
Ana-Marie | Vranceanu | |
Brigitte | Widemann | |
Chungling | Yi |
CTF STAFF | Annette | Bakker |
Vidya | Browder | |
Kate | Kelts | |
Pamela | Knight | |
Salvo | La Rosa | |
Marco | Nievo | |
Patrice | Pancza | |
Heather | Radtke |
Invited and Platform Speakers | Taryn | Allen |
Fatima | Banine | |
Belinda | Barton | |
Sarah | Borrie | |
Gary | Brenner | |
Nicole | Brossier | |
Wenli | Cai | |
Eric | Chang | |
Long-Sheng | Chang | |
Zhiguo | Chen | |
Yoshua | Collins-Sawaragi | |
Allison | del Castillo | |
Eva | Dombi | |
Xinzhong | Dong | |
Karoline | Doser | |
Garrett | Draper | |
Alex | Dyson | |
Shruti | Garg | |
Pushpankur | Ghosha | |
Marco | Giovannini | |
Andrea | Gross | |
Kun-Liang | Guan | |
Barry | Gumbiner | |
Dorothy | Halliday | |
Robert | Hennigan | |
Ly | Ina | |
Xuejun | Jiang | |
Michael | Kalamarides | |
Matthias | Karajannis | |
Joe | Kissil | |
Bruce | Korf | |
Lu | Le | |
Kristin | Lee | |
Ethan | Lester | |
Staci | Martin | |
David T. | Miller | |
Geraldine | O'Sullivan Coyne | |
Sara | Osum | |
Luis | Parada | |
Jonathan | Payne | |
Cody | Peer | |
Jonathan | Rios | |
Tena | Rosser | |
Aaron | Schindeler | |
Kevin | Shannon | |
Miriam | Smith | |
Vicki | Swier | |
Stephanie | Taylor | |
Yu | Teranishi | |
Raquel | Thalheimer | |
Rebekah | Tritz | |
Caitlin | Tydings | |
James | Walker | |
Wenqi | Wang | |
Katherine | White | |
Brigitte | Widemann | |
Kyle | Williams | |
Pierre | Wolkenstein | |
Pam | Wolters | |
Jiangiang | Wu | |
Kaleb | Yohay | |
Yanan | Yu | |
Yuan | Zhu |
Abstract Reviewers | Rob | Avery |
Allan | Belzberg | |
Jaishri | Blakeley | |
Long-Sheng | Chang | |
Peter | de Blank | |
Thomas | de Raedt | |
Rebecca | Dodd | |
Eva | Dombi | |
Gareth | Evans | |
Ros | Ferner | |
Michael | Fisher | |
Filippo | Giancotti | |
Marco | Giovannini | |
Justin | Jordan | |
Michel | Kalamarides | |
Matthias | Karajannis, | |
Kate | Kelts | |
Bob | Keterson | |
AeRang | Kim | |
Joe | Kissil | |
Bruce | Korf | |
David | Largaespada | |
Antonio | Lavarone | |
Conxi | Lazaro | |
Lu | Le | |
Eric | Legiuc | |
Rob | Listernick | |
Allison | Lloyd | |
Victor | Mautner | |
Chris | Moertel | |
Leia | Nghiemphu | |
Patrice | Pancza | |
Laura | Papi | |
Eric | Pasmant | |
Juha | Peltonen | |
Sirkkku | Peltonen | |
Alejandra | Petrilli | |
Scott | Plotkin | |
Heather | Radtke | |
Vic | Riccardi | |
Aaron | Schindeler | |
Betty | Schorry | |
Eduard | Serra | |
Larry | Sherman | |
Miriam | Smith | |
Dave | Stevenson | |
Nicky | Ullrich | |
Dave | Viskochil, | |
Jeremie | Vitte | |
Ana-Maria | Vranceanu | |
Peggy | Wallace | |
Karin | Walsh | |
Adrienne | Watson | |
Jill | Weimer | |
Brad | Welling | |
Chungling | Yi | |
Yuan | Zhu |
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education through the joint providership of the Medical College of Wisconsin and Children’s Tumor Foundation. The Medical College of Wisconsin is accredited by the ACCME to provide continuing medical education for physicians.
The Medical College of Wisconsin designates this live activity for a maximum of 30.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
The Medical College of Wisconsin designates this activity for up to 30.0 hours of participation for continuing education for allied health professionals.
Available Credit
- 30.00 AMA PRA Category 1 Credit(s)™AMA PRA Category 1 Credit(s)™
- 30.00 Hours of ParticipationHours of Participation credit.