The 2019 Neurofibromatosis Conference

San Francisco, CA US
September 22, 2019 to September 24, 2019

First held in 1985 as a roundtable of 20 participants, the NF Conference is now the most important scholarly gathering of the NF research and clinical communities. The NF Conference is a global event, attracting more than 300 participants worldwide across a wide range of scientific disciplines, from research and clinical backgrounds, all focused on improving outcomes for patients with neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis. The NF Conference is a critical forum for consensus building and advancing basic, translational, and clinical research in NF and related fields, while fostering collaborations within and beyond the NF community. Importantly, the NF Conference is a key venue for attracting and growing new investigators in NF research and clinical care.


Target Audience

NF Clinicians and Researchers including clinic directors, clinic coordinators and other clinic providers.  This group consists of physicians, nurses and genetic counselors.

Learning Objectives

Basic Research

  • Understand the latest scientific breakthroughs related to the biology of NF
  • Understand the major outstanding questions related to the molecular and cellular biology of NF
  • Show how basic science relates to the development of NF tumors and other NF-associated conditions

Translational Research

  • Ensure that clinicians and basic scientists are able to communicate and collaborate effectively by providing teaching on scientific terminology and approaches to signaling and animal models.
  • Show how molecular advances have allowed targeted therapy for NF complications.
  • Understand the histology of new animal models for NF (NF1, NF2 and schwannomatosis), and to describe the spectrum of lesions in relation to human tumors and to recent molecular data.

Clinical research

  • Ensure that there is up to date knowledge of the diagnosis, clinical phenotype and natural history of the neurofibromatoses.
  • Discuss current management of common complications of the neurofibromatoses in children and adults.
  • Discuss and produce robust clinical and quality of life outcome measures to monitor disease.

Clinical practices

  • Provide education on assessment and monitoring of NF related complications e.g. neuropathy and neurovascular disease.
  • Discuss standardized approach to diagnosis and monitoring of malignant peripheral nerve sheath tumors.
  •  Discuss a series of difficult case studies, utilizing an interdisciplinary approach to treatment.
Additional information


Patrice Pancza
Phone Number: 
+1 (212) 344-7291
Course summary
Available credit: 
  • 30.00 AMA PRA Category 1 Credit(s)™
    AMA PRA Category 1 Credit(s)™
  • 30.00 Hours of Participation
    Hours of Participation credit.
Course opens: 
Course expires: 
Event starts: 
09/22/2019 - 7:00am
Event ends: 
09/24/2019 - 9:00pm
Hyatt Regency San Francisco
5 Embarcadero Center
San Francisco, CA 94111
United States
+1 (415) 788-1234

Specific disclosure information provided on-site at meeting.

 Dawn Quelle
 Matthew Steensma
CTF STAFFAnnetteBakker
 Vidya Browder
 Pamela Knight
 SalvoLa Rosa
 Heather Radtke
Invited and Platform SpeakersTaryn Allen
 Fatima Banine
 Gary Brenner
 Nicole Brossier
 Wenli Cai
 Long-Sheng Chang
 Yoshua Collins-Sawaragi
 Allisondel Castillo
 Eva Dombi
 Xinzhong Dong
 Karoline Doser
 Garrett Draper
 Alex Dyson
 Pushpankur Ghosha
 Andrea Gross
 Dorothy Halliday
 Robert Hennigan
 Michael Kalamarides
 Lu Le
 Staci Martin
 David T. Miller
 GeraldineO'Sullivan Coyne
 Sara Osum
 Luis Parada
 Jonathan Payne
 Kevin Shannon
 Vicki Swier
  Yu Teranishi
 Caitlin Tydings
 James Walker
 Katherine White
  Kyle Williams
 Pam Wolters
 Jiangiang Wu
 Yuan Zhu
Abstract ReviewersRobAvery
 Peterde Blank
  Thomasde Raedt


This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education through the joint providership of the Medical College of Wisconsin and Children’s Tumor Foundation. The Medical College of Wisconsin is accredited by the ACCME to provide continuing medical education for physicians.
The Medical College of Wisconsin designates this live activity for a maximum of 30.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

The Medical College of Wisconsin designates this activity for up to 30.0 hours of participation for continuing education for allied health professionals.  

Available Credit

  • 30.00 AMA PRA Category 1 Credit(s)™
    AMA PRA Category 1 Credit(s)™
  • 30.00 Hours of Participation
    Hours of Participation credit.


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