Pediatric Adolescent and Young Adults (AYA) Survivorship Conference

October 16, 2020

Due to the incredible success rates in treating pediatric oncology patients, one in a thousand young adults in the United States is a survivor of childhood cancer.  The therapies that were required to kill the cancer can also damage normal tissue.  These children are often left with side effects of the cancer and its treatments such as learning problems, fertility issues, disturbances of growth and pubertal development, and heart and lung damage.  Children who have had cancer need lifelong care to monitor for and treat late effects of cancer therapies, recurrences (including secondary cancers), and to address the unique psychosocial, nutritional, rehabilitation, and other needs that may arise years after treatment ends. The quality of life for pediatric cancer survivors is tremendously improved through access to comprehensive care. And yet, the vast majority of survivors of all ages continue to suffer from limited access to medical, psychosocial, and supportive care they need following cancer treatment, especially adolescents and young adults. Although research on some survivorship issues appears to be increasing, research inclusive of adolescents and young adults diagnosed with cancer continues to lag far behind other age groups. Adolescent and young adult specific healthcare and other survivorship-related needs are poorly understood and poorly served.  Providers need reliable, innovative, and up-to-date information sources to stay abreast of research and care advances, including technology, relevant to their individual patient’s situations. Providers need to know the best tools available to educate and serve their patients. Dissemination research still is in its infancy, but its utility for reaching public, patients and health provider audiences with new cancer knowledge and interventions is highly appreciated.

Target Audience

  • Pediatricians
  • Family Practice Physicians 
  • Nurse Practitioners
  • Physician Assistants

Learning Objectives

Participants who engage in this educational intervention will be able to:

  • Explain techniques of self-management for cancer survivors.
  • Outline the contents of a telemedicine and how it enhances survivors’ care for patients with social determinants. 
  • Analyze the importance of fertility education and ways to address fertility issues through best practice consult approach via electronic medical records.  
  • List benefits of exercises and diet during cancer treatment and identity the best tools to promote healthy choices for cancer survivors.
  • Explain virtual reality and best practices to support patient’s psychosocial needs via virtual reality.  
  • Discuss utilization of electronic medical records to enhance and ensure appropriate transition survivorship care for medical providers.
Additional information

Contact

Name: 
Elizabeth Malten
Phone Number: 
+1 (414) 266-6242
Course summary
Available credit: 
  • 5.25 AMA PRA Category 1 Credit(s)™
    AMA PRA Category 1 Credit(s)™
  • 5.25 Hours of Participation
    Hours of Participation credit.
Course opens: 
07/01/2020
Course expires: 
12/31/2020
Event starts: 
10/16/2020 - 9:00am CDT
Event ends: 
10/16/2020 - 12:25pm CDT
Cost:
$0.00

AGENDA

9 a.m. | Welcome
Rachel Phelan, MD, MPH | Children’s Wisconsin and Medical College of Wisconsin

9:05 a.m. | Keynote: A Program of Research to Understand and Improve Self-Management of Adolescents and Young Adults Impacted by Cancer
Lisa Schwartz, PhD | Children’s Hospital of Philadelphia

9:50 a.m. | Using Technology to Maximize the Impact of Your Fertility Consult Team
Karen Burns, MD, MS | Cincinnati Children’s Hospital

10:35 a.m. | Promoting a Healthy Lifestyle During and After Cancer Therapy, in the Hospital, at Home and in the Community
Kirsten Ness, PT, PhD, FAPTA | St. Jude Children’s Hospital

11:20 a.m. | Survivor Panel Discussion: Integrating Technology into my Wellbeing
Moderator: Kristin Bingen, PhD | Children’s Wisconsin and Medical College of Wisconsin

11:55 a.m. | Live Q&A with survivorship panel and pre-recorded session speakers 

12:25 p.m. | Closing remarks
Jocelyn Morin, MPH | Children’s Wisconsin

 

Additional sessions

Making the Reach: Educating Survivors through Telemedicine
Rachel Phelan, MD, MPH | Children’s Wisconsin and Medical College of Wisconsin & Michelle Manalang, MD | Marshfield Medical Clinic

Use of Virtual Reality for Pediatric & AYA Cancer
Jenny Hoag, PhD | Children’s Wisconsin and Medical College of Wisconsin

Using Intentional Design to Improve Pediatric Cancer Care
Sadie Dobrozsi, MD, MS

Virtual Meeting
Milwaukee, WI 53226
United States

In accordance with the ACCME® Standards for Commercial Support Six, all in control of content must disclose any relevant financial relationships. The following in control of content had no relevant financial relationships to disclose.

Planning Committee:
Kristin Bingen, PhD
Rachel Phelan, MD
Deb Schmidt, APNP
Kristen Slusar, NP
Julie Nichols, RN, BSN

Speakers:
Kristin Bingen, PhD
Children’s Hospital of WI

Karen Burns, MD, MS
Cincinnati Children’s Hospital

Sadie Dobrozsi, MD
Children’s Hospital of WI

Jenny Hoag, PhD
Children’s Hospital of WI

Michelle Manalang, MD
Marshfield Medical Clinic

Jocelyn Morin, MPH
Children’s Hospital of WI

Kristen Ness, PT, PhD, FAPTA
St. Jude’s Children’s Hospital

Lisa Schwartz, PhD
Children’s Hospital of Philadelphia 

In accordance with the ACCME® Standards for Commercial Support Six, all in control of content must disclose any relevant financial relationships. These relationships were reviewed via the MCW conflict of interest resolution process and resolved.

Name

Company

Role

Rachel Phelan, MD, MPH

 Orchard Therapeutics

 One time Advisory Board Member

 

 

 

The Medical College of Wisconsin is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

The Medical College of Wisconsin designates this live activity for a maximum of 5.25 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

The Medical College of Wisconsin designates this activity for up to 5.25 hours of participation for continuing education for allied health professionals.

Available Credit

  • 5.25 AMA PRA Category 1 Credit(s)™
    AMA PRA Category 1 Credit(s)™
  • 5.25 Hours of Participation
    Hours of Participation credit.

Price

Cost:
$0.00
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